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Saturday, January 22, 2011

Stem Cell Transplant day 2

Hello everyone.

I have some suggestions for you if you are ever admitted for a Transplant.

Do not take for granted everything they tell you over the phone!

Here is what I mean by that: I was told by phone that I had to be here before 11 AM....ended up waiting till 2 PM to have a room! Gave my list of Meds from the Pharmacy but for some reason everyone is in a hurry on a Friday afternoon! They mixed everything up! So (BRING YOUR MEDS!!!) just in case the same happens to you. You will have them at hand if this happens to you! Things aren't totally sorted out yet for me. Just met with the Nurse and the Weekend Doctor to sort it all out now waiting for the Pharmacy downstairs to prepare them but of course they too are short handed being the weekend!

My Picc Line was bleeding all night but has stopped now! That too was done in a hurry! But all fixed thanks to the wonderful nurse!

I was also told there was wireless Internet but...NOT! So I have to use the hospital computer still and it is not always available!

I was also told that the bottled water was included....NOT!

Don't get me wrong, I'm in a good mood and making the staff laugh and all but just wanted to let you know to keep an eye on everything. That is why we say "Knowledge is Power" Learn ALL you can about your Cancer and double check everything. When a Hospital is at 218% Capacity like here, errors can happen! Try to make friends with the Nurses and they will help you and keep an eye on you! Insist on getting all the info on what is happening or side effects of what they give you etc...!

Today, not much happening, Had a Chest x-ray last night around 6PM. Had Blood work done at 5:30 AM (14 vials this time).I Will receive another dose of PALIFERMIN late afternoon. I do not have any side effects form this so far!

If any of you wish to ask questions in French please find my email address in my Profile and send me an email. I will reply to the best of my knowledge as soon as I can. In French:  Ceux qui veules me poser des questions en Francais SVP allez dans mon profile et envoyez moi un couriel et je vais y repondre du mieux que je peut le plus tot possible. MERCI!

Wishing you all a great afternoon!

Keep Fighting



Anonymous said...

Hi Yvon,

I wish you all the best of health !
Just a question , in english :P , what's CYBORD protocol ? is it standard or clinical trial ?
take care . Stay + !

Yvon Papillon said...


Yes for now CyBorD is the standard Ususaly for newly diagnosed patients. I recieved it even though I have had many other Chemos before my first BMT. Since I was in complete remission for 4 1/2 years they decided to use that Protocol.

Hope that answers your Question.

Keep Fighting!